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Usher syndrome is a rare inherited disorder in which both hearing and vision are affected. Living with Usher syndrome is profound and also affects the lives of those around them. Until today, there is no treatment to stop the deterioration of hearing and vision. Stichting Ushersyndroom funds scientific research into an effective treatment so that children with Usher syndrome no longer going deaf AND blind. Willing to help? Start creating your sponsorship today.
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