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Usher syndrome is a rare inherited disorder in which both hearing and vision are affected. Living with Usher syndrome is profound and also affects the lives of those around them. Until today, there is no treatment to stop the deterioration of hearing and vision. Stichting Ushersyndroom funds scientific research into an effective treatment so that children with Usher syndrome no longer going deaf AND blind. Willing to help? Start creating your sponsorship today.

For some inspiration you can take a look below at Events, you never know, maybe your action will fit in perfectly and you can get involved!

 

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DONATEUSH2025, the International Symposium on Usher Syndrome, is organized under the responsibility of Stichting Ushersyndroom and is made possible by the efforts of a group of enthusiastic volunteers. We try to limit the use of paid staff as much as possible. It is special that a scientific congress is organized by a patient organization and it is unique that this symposium will take place in the Netherlands. We want to do this as well as possible and as much fun as possible!The USH2025 Congrestival, on Saturday, June 21, 2025, will be the feast of the senses!  Where everyone can experience science, art, music and stories with all the senses. The sensory experiences will have a focus on sight, hearing, touch, taste and smell. Our ambition is to make USH2025 accessible to everyone. This requires a lot of extra effort, manpower and technology. There is a team of professional interpreters and we use modern resources such as Speaksee, for example. This makes the congress more expensive than a comparable scientific congress that does not have this challenge. We are therefore also dependent on your donations!Please contribute to making USH2025 Congrestival unique and special for everyone! Donate and make an impact! Thank you πŸ™πŸΌTogether we work for a future without boundarieswithout limitations and without Usher syndromeDONATEWant to learn more about USH2025? Then go to the website: USH2025.ORGWould you like to participate in USH2025 Congrestival? Then sign up here.
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Create a individual fundraising page or participate with a team of friends, co-workers or sports team. Need a little inspiration? Look at the great examples below.

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€10

Boelo

31-03-2025 | 21:59 To: Richards run4usher 3x